Originally Posted by skinsguy
Wow, well I guess I need to update this thread. I was actually in the process of starting a new thread the other day, but I never got a chance to finish it. So, as you guys may know by now, our son was born seven weeks premature. He was born with two heart defects, an ASD and a VSD. The VSD is the biggest issue. The ASD is just a small hole.
He's been in the NICU for over seven weeks now. He's heading into his eighth week in the hospital. We thought that today would be the day they would transfer him down to Duke Hospital, because he started showing signs of needing the open-heart surgery and the doctors wanted to go ahead and proceed with the plan.
Well, I found out today that my son is sick and they have him in isolation. He's not back in the incubator, so I'm hoping this just means that he's not very sick, but enough to keep him from any other germs. The bad news of all of this is that it has postponed his transfer to Duke, so we're not sure when he gets transferred now.
Obviously, I was hoping he'd get transferred this week. If he was transferred early enough, there would be a chance that he could have the procedure done before the week was out, and that my two weeks off for the holidays would be spent on his two weeks of recovery. Basically, so that I'd not miss major time at work. I have just started my job, and I have no vacation time. I don't even qualify for FMLA, so technically, they could fire me for taking off work for an extended amount of time.
Depending upon when our son has his surgery, I could be out of work for a month. That's a long time without a paycheck! So anyway, the situation has been pretty hard on my wife and I. My wife is close to having a nervous breakdown. I'm surprised she's held up as well as she has. She's had some physical issues coming out of this pregnancy as well.
On a bright note though, I absolutely love my son! He is so precious and such a life changer! Right now, I'd do just about anything for my son! I just want him well, his heart fixed up, and his feedings to go better, so that we can get him home. Needless to say, Christmas has sort of been cancelled for the Skinsguy family this year. We will be spending it in a hospital, probably Duke, but we are thankful for our son!
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